Who We Are

We exist to conquer the most common birth defect. Congenital heart disease is the most common birth defect in the United States and worldwide. 1 in 100 people are diagnosed with CHD and nearly 40,000 babies will be born with CHD in the U.S. this year. Estimates suggest there are more adults living with CHD than children, upwards of 1.5 million.

We create visibility and empower all impacted by CHD. Our work fights for all congenital heart disease patients and their families, from prenatal diagnosis through adulthood and those families who have lost loved ones. Patients and families representing all states, races, ethnicities, ages, and with all types of CHD are part of our organization. We accomplish this through awareness, community, knowledge, and research. Beginning as a grassroots organization, we have built a robust network of collaborations – patients, family members, lawmakers, medical providers, scientists and media. 

As patients and families ourselves, we know first-hand the importance of timely information in making decisions, support during difficult times, and the desire to spread as much awareness as possible. Our collective experience informs our evolving projects and enables us to connect with our broader community, responding quickly to the area of greatest need. Conquering CHD serves as a beacon of hope for CHD patients and families and we invite you to join us in the fight against the most common birth defect. Together, we are #ConqueringCHD!